Invisible Illness, Invisible Me?

Invisible Illness, Invisible Me?

I hate that I have to use a walking stick. It is a constant reminder by my side that I have something wrong with me.

But, in a way, I’m incredibly thankful that I have it.

It’s a little bit of proof to the outside world that I have a legitimate disability.

There was a video floating around the internet recently of a woman who was parked in a disability parking space, with a legitimate blue badge, and a man (who also had a blue badge) arguing over whether the woman was deserving of parking where she had. He was ranting at her, even telling her she was just ‘too idle to walk over there’.

Another incident I would like to mention is that of a woman who, again, had a legitimate blue badge, and had just popped to the shops. When she came back to her car there was a note:

Absolutely awful, I know.

The thing that both of these incidents have in common is that the women involved both have Fibromyalgia.
Firbomyalgia, like many chronic pain conditions, is a relatively invisible illness. Unless it causes you to have a mobility issue and you need a walking aid, like me, Fibromyalgia goes relatively unseen by most.

Pain is an incredibly inhibiting thing, and I would not wish it on my worst enemy. It’s exhausting, depressing, demoralising, anxiety inducing, mobility hindering and aggravating. Having an invisible illness and having people constantly question ‘how disabled you actually are’ can just add to problems. This is why it is essential to listen to those in pain, rather than just dismissing them because of their appearance; ever heard of ‘never judge a book by it’s cover’? The lessons we were taught in childhood should still apply today.

Those with an invisible illness and chronic pain must also realise that, for people who have never experienced pain 24/7, it can be virtually impossible to comprehend. I know that I understand how odd it must seem to some, most people only have experiences of short term pain and the fact that invisible illnesses even exist can baffle people. However, as much as I can forgive ignorance of a condition, I could never stand by what was done to the women above. Ignorance doesn’t justify cruelty.

So, just remember when you see someone park in a disability spot and they seem perfectly okay, remember, with pain, all is not what it seems.

 

Side Note:

Sorry that I have not posted in so long! I’ve missed a lot of school recently due to pain and I could not justify working on anything else but school work. Hopefully the summer will be kind to me and I’ll be able to do other things (like this!).

 

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6 Comments

  1. Phoebe
    July 24, 2018 / 7:04 pm

    Wow, Firstly this is so well written but also its eye opening to read about your condition. Thank you and keep it up ❤

    • molly
      Author
      July 27, 2018 / 1:33 pm

      Thanks so much phoebs💛 you’re support means so much – love you💛

  2. Scott Stygall
    July 24, 2018 / 11:13 pm

    Molly this is an amazing piece well done.

    • molly
      Author
      July 27, 2018 / 1:32 pm

      Thank you so much🌟

  3. Laura
    July 26, 2018 / 10:11 am

    Molly, I loved reading this. How well you articulate the difficulties with invisible disabilities and health issues.
    And the disabled parking example is very poignant. Thankyou for your thoughts and your transparency regarding your own situation. It is invaluable for everyone to read! I have Hashimoto’s Thyroid Problems and a few other smaller issues, and it is hard for people to comprehend when I say I don’t have the energy or have pace myself or cannot work the long hours my peers do.. so thankyou for sharing!

    • molly
      Author
      July 27, 2018 / 1:31 pm

      Hi Laura! Thanks so much, I’m glad you liked it. It’s always a great feeling that someone understands what you’re going through, although I wish you didn’t have to deal with it!! Good luck with what you’re going through, and I hope you’re not in too much pain. Thanks again for commenting🌟

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